National Fibromyalgia & Chronic Pain Association is very concerned and has heard from many of you who are desperate about not being able to find pain relief.  The recent opioid policies address the many overdose deaths Displeasedgroup300x129in the addiction community.  According to our national survey, we know that these new restrictive policies are having alarming consequences, including chronic pain patients thinking about suicide due to inability to access previously used medications and living with unmanaged pain (27.2%). 

We need to share these stories with our policy makers so they will understand that pain, suffering, and death are occurring in the chronic pain community just as they do in the addiction community.  If you have a story about this very serious issue, please share it with us.  No one should believe that suicide is the only escape from chronic pain.  We want policy makers to understand that, too. 

Chronic pain is a disease.  People with life-altering pain are suffering more because of recent opioid prescribing policies.  The National Pain Strategy must be implemented.  Why is the U.S. Depart

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ment of Human Services not also supporting the 100 million people with chronic pain?

Your voice matters.  Please consider submitting your story at  


Want to be involved through influencing policy?  We need your help!  Every day state and national legislation becomes policy that affects the chronic pain community.  Please join us in Allies State Allies Against Pain FB profile image blackAgainst Pain to receive Calls to Action notices and e-alerts about legislation and policy actions

An Online Survey of Patients' Experiences Since the Rescheduling of Hydrocodone:  The First 100 Days

ABSTRACT:  Published in Pain Medicine, 26 December 2015

Objective.  To conduct an Internet patient survey through the National Fibromyalgia & Chronic Pain Association on reactions to the first 100 days following the rescheduling of hydrocodone.

Methods.  Face-valid survey questions were created with expert consensus along with repurposed questions used on previous NFMCPA surveys covering domains such as demographics and symptoms. The questionnaire was designed to be administered over the Internet.

6,420 responders met screening criteria and completed the survey. Most (5,181, or 82.5%) had been prescribed hydrocodone for more than 1 year. 2,296, (39.0%) reported no changes in access to hydrocodone, while the majority experienced some barriers. Of those who could no longer get hydrocodone, 1,067 (18.1%) borrowed pain medications, 1,007 (17.1%) turned to marijuana, 773 (13.1%) used alcohol, and 135 (2.3%) used illicit drugs. Most respondents had to visit their healthcare providers more often (N = 3,699, 64.2%) and 1,735 (30.3%) reported some type of issue interacting with their pharmacy. Most felt that the rescheduling was neither a fair nor appropriate solution to the abuse of hydrocodone (N = 4,938, 88.3%). For those still working, 801 (46.2%) reported that they had missed work because of the stricter regulations. 1,462 (27.2%) reported having thoughts of suicide since the rescheduling.

Significance.  The unintended consequences for people with chronic pain that have been caused by the rescheduling effort to impede hydrocodone abuse are negatively impacting thousands. These consequences include suffering from being placed on less effective drugs, increased cost, inconvenience, and negative influence on physician–patient and pharmacist–patient relationships.

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